Disability Humor Life

Taking Up Space As A Wheelchair User

4th December 2019

We spent some time on Saturday throwing axes at the Christmas market. It’s not what you think.

Or maybe it is.

On Saturday, I’m doing some writing in bed (that happens now), and we’re deciding if we want to get festive. No, really.

‘We should go out. Let’s go out.’

We didn’t go out. We made pancakes, or Neil did.

‘Do we eat breakfast at night now?’ asks Isla.

‘No, it’s just really dark out in the mornings these days.’

‘Oh. That’s not cool.’

‘It’s cold,’ I said.

She used to look at me and go ‘Mummy funny.’ But she doesn’t any more.

Anyway.

We should go out. But let’s not.

We’re eating pancakes, and then Neil fills the bird-feeder, because we have one. Then he goes out to scrape ice off our old-new-boring car. Because we have one of those, too.

He leaves the kitchen door open, and I’ve moved my laptop to the table. I’m writing, but I see something flutter through the door. And into the laundry room, where I can never reach.

So, I’m writing.

Neil comes back.

‘Check for birds. Something flew in.’

And he skulks. ‘Oh, it’s a robin.’

Now.

My Nana loved robins. And cardinals. And any type of reddish bird. So, they give me quaint, fuzzy feelings. It’s a visit. Like butterflies are my Grandma.

Are robins good luck? I believe so.

But I like these visits best outside my kitchen.

Honestly, I’m in the hallway with my exaggerated fright reflex, going ‘is it gone?’

My husband is tiptoeing around the kitchen like a benevolent giant going, ‘I’ve had budgies, EVERYTHING’S FINE.’

Mr Robin flew out the window. If you’re wondering why robins are around in winter, read this.

Message to Nana, hope I didn’t ruin the good luck charm by freaking out.

‘LET’S GO OUT,’ I suggested.

So we bundle up and head to the Christmas market in town.

Real talk, I didn’t know so many people lived here.

Dealing with crowds as a wheelchair user is always interesting. It amazes me how much of my personal space people think they can take up. I’m sitting here. Don’t step over me. Don’t step over me, but don’t talk over me. I am not invisible. And if it looks like someone’s gonna sit on my lap, I’m gonna tell them to piss off. Nice shoes, though.

And there’s a point system. Excuse me, thanks.

Isla is looking at the raffle tables, but my view is mostly people’s butts.

There’s a bouncy castle, more butts.

Isla stands with Neil, waits her turn. I’m separated from them by a few rows of people. I’m shouting, ‘Pull her jacket UP.’

‘What?’ says Neil.

So I texted him.

Isla’s jumping around and I’m at the perfect level to get sneezed on by other people’s children. Hi. At least ask me what my name is first? Maybe?

More waiting for five minutes in a snow-globe, but Isla asked Neil to wear her ear-muffs, and he obliged.

The things Dads do.

And then Isla got to throw some axes. At targets. Not people. Like that time I tried target sports.

And in other news, yesterday was International Day of People With Disabilities or to give it its shorter identity-first name, International Day of Disabled People.

I didn’t write anything new. I planned to, but Isla came home sick from school.

She went straight to my bedroom. And then she farted. I’m just sitting here thinking: BE YOURSELF. LET IT GO. Or something.

She’s fine.

Instead of writing, we watched TV and ate jello. But here’s a list of my top disability blog posts.

And I did share some work of other disabled writers on Gin & Lemonade’s FB page.

And also, this.

If the future is accessible, now would work, too.

As I read other people’s words, what kept coming up is Carrie-Ann’s question, ‘why are we still waiting for this to be the future?’

We go on. Today’s another day. Take up your space.

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23 Comments

  • Reply Gabi Coatsworth 4th December 2019 at 4:47 pm

    I love the fact that you’re so honest on here. (By which I mean frustrated and annoyed.) And those long nights way up North must only make things worse, I’d guess. Only 17 more days until the days start getting longer…

    • Reply Lorna 4th December 2019 at 7:06 pm

      Honest and matter of fact, ha! We have one of those fake dawn lights in the bedroom, too. That works. Always thinking good thoughts for you over there, Gabi!

  • Reply Debbie from Deb's World 4th December 2019 at 7:03 pm

    Fabulous words Lorna, I love reading your perspective and about your family life 🙂 I’ve really noticed the darkness since being over here but am enjoying the change of scenery.

  • Reply Rebecca Moon Ruark 4th December 2019 at 7:05 pm

    Ahhhhhh, I love this. Take up your space. Yes! (I also kept thinking I should get out of the house this past weekend, but just kept diving back into the pumpkin pie. It’s gone now, so I went shopping today (nothing super exciting: bras for me, uniform pants for the boys)). Anyway, I was super intrigued by your post title, and it instantly made me think of the SOCY 101 course I took as an idiot college freshman. One lesson was about body language, difference between males/females and the space we use. The prof had us look down at our bodies–guys mansplayed all over the place; girls with arms and legs crossed. Even my more outgoing 10 year old (who weighs only 75 pounds) manages to take up man-sized space. So, I thought of your fixed space–your chair–and wondered how people treat that. Now I know–stepping over, ugh. Anyway, super thought-provoking, as always. May the Isla farts be few and the nighttime pancakes many!

  • Reply Chips and Cookies 5th December 2019 at 3:39 pm

    Once again, you make me think. And I thank you for it. I always root for the underdog, but in this day and age, disability shouldn’t MAKE someone an underdog. We have to do better.

    As we plan our new reptile building, I am able to offer feedback on how things are structured, and I am always advocating that ALL of our exhibits be accessible to people of all abilities. It’s past time for wheelchair users to be considered.

    Watch your mailbox, friend.

    • Reply Lorna 5th December 2019 at 4:00 pm

      Thank you for the penguin books! I tweeted you, but I don’t know if you saw. 🙂

      • Reply Chips and Cookies 5th December 2019 at 4:06 pm

        I don’t think I saw the tweet. Things have been off the rails here.

        I sincerely hope she loves them! They make my very self-contained husband laugh out loud. I had never sent anything to the Isle of Sky before, so I wasn’t sure if I wrote the address right.

        • Reply Lorna 5th December 2019 at 4:11 pm

          Hope everything’s OK? Sorry I’ve gotten so modern with my thanks. She does love them, and I love the painting. xox

          • Chips and Cookies 5th December 2019 at 6:45 pm

            Everything is great! Too many good things crowding my schedule.

  • Reply Beth 6th December 2019 at 7:09 pm

    Preach sister. I’m kind of excited that there’s a Lego set I’m looking at getting Ollie for Christmas – a bus and bus station – and it includes a wheelchair user. It’s a small thing, but if I can teach him some awareness at a young age, I think that’s a good thing.

  • Reply Kim Munoz (@KMunoz28) 7th December 2019 at 3:33 am

    Throwing axes, farts and wanting to go out but stay in…I can totally relate there. I saw people talking over a child in a chair the other day and though how incredible frustrated he must be. Thank you for opening my eyes. Your open and honest writing is refreshing! Have a great weekend!

  • Reply Charlotte 9th December 2019 at 9:16 pm

    The way you write is always so heartfelt and honest and I just love that so much about your blog space ❤️ Never change. K? Okay:

    Once I was out for drinks with a friend and we got shifted to this weird side table and basically we called our view the “wall of asses.” Reminded me of your view at the German market. Also it’s very rude that people don’t respect personal space when you’re in a wheelchair. Also cropdusting. My dog is notorious for this and it’s just the worst!!

    • Reply Lorna 9th December 2019 at 9:47 pm

      Thank you, Charlotte. I won’t change if you won’t. Funny, I was just catching up with you, too.

  • Reply gemmaorton 10th December 2019 at 3:27 pm

    I text people in the same place as me too. I’m rubbish at shouting and sometimes there’s just no way through.
    I’ve seen way to many bums lately, I went to a Christmas Market a couple weeks ago. It was a mission but the cheese samples were worth the effort!

    • Reply Lorna 11th December 2019 at 9:36 am

      See, I can’t even partake in the cheese samples because of The Dude. Mince pies are not the same. Glad you got some!

      • Reply gemmaorton 16th December 2019 at 11:55 am

        Mince pies are still good, but cheese is cheese. I even have a cheese advent!

  • Reply Ellen @ If It Brings You Joy 16th December 2019 at 1:55 pm

    I can relate to feeling like I should go out but don’t feel like it. The wheelchair view is a perspective that I haven’t lived, and your words will make more aware in the future.

  • Reply lindahobden 16th December 2019 at 4:50 pm

    Axe throwing must be the “in” thing at Christmas fairs & functions … my boys did a spot of axe throwing at the local steampunk fair 😊

  • Reply carol 16th December 2019 at 5:26 pm

    Thank you for this slice of your life… kind of like my life…only not. The beat goes on…

  • Reply Laurie Stone 16th December 2019 at 8:08 pm

    Lorna, You’re a brave, wonderful writer. Hope you take up lots of space.

  • Reply Jennifer 18th December 2019 at 11:49 am

    Axe throwing, bedroom farting, and bouncy houses? Now that’s the Christmas spirit!

  • Reply Tonia 21st December 2020 at 5:37 pm

    ‘Check for birds. Something flew in.’

    Me: NOPE!

    ‘Isla is looking at the raffle tables, but my view is mostly people’s butts.

    There’s a bouncy castle, more butts.’

    Me: Yup. That’s about right. <3

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