If you hang around online long enough, you might meet someone in the comments section who claims they’ve overcome Cerebral Palsy by doing yoga and thinking positively. Well, that someone is not me, that’s not how CP works, and the thought that we can suddenly be free of it is dangerous. I said all this to someone recently and then vowed never to read the comments section anywhere again. (Except here, hi.) That real comment got me thinking, as I…
Isla’s new trick is to drape herself across the two close together couches in our living room, and kind of just hang out there. ‘This is supposed to be a comfortable yoga pose,’ she says. ‘Is it?’ I ask. ‘I don’t think so.’ ‘Good. Sit up so you don’t fall and hurt yourself.’ And she does, because I’m her mother, and sometimes she listens to me. She goes back to drawing and shows me her newest masterpiece a little while later. ‘Look, it’s us.’ she says.…
‘If you need me, I’ll be in the bath with my goggles on,’ said my newly minted six-year-old, over the weekend. June is a pretty big month for us around here, but I think life lately can be summed up in that sentence. We celebrate how and where we can. And even though it’s June, the weather has turned October-ish, so socially-distanced cupcakes outside get rained out, or cut short. More on that later. Before Isla’s birthday there was our…
I’ve never considered myself a spoonie, but I think I’ve run out of spoons these past few weeks. I thought I’d be riding shotgun today on a trip with a moving van to get the last of our stuff from the house to wherever it’ll fit. Regular readers will know that I love road trips for the music mixes and uninterrupted reading time. But the thing I can’t wait for this time, the thing that gets more like a dream…
It was like a wheelchair slalom course to get to my writing space today. I dodged that packing box over there, went around that Lego, and drove over that random, lone shoe. Ever since I wrote on looking for a house when you’re a wheelchair user, I’ve been waiting to share my tips on moving house when you’re a wheelchair user. Real talk, I’ve moved around a lot. As a family, we’ve lived in two houses in The Frosty North.…
