When I was getting married, I only had a few must-haves for my wedding dress. 3. Wedding dress must not make me look like a giant cupcake and/or little girl playing dress up. 2. Wedding dress must be purple. And my number 1 on my wedding dress list: The dress and I had to both sit comfortably in my wheelchair at the same time. I had to wear the dress, the dress could not wear me. When I was growing…
It’s been an interesting couple of days in the not so frosty North. I wanted to write a letter to Neil about our fifth wedding anniversary, about how one day we got married and the next day Isla was nearly four and having her first dance recital. That’s exactly what happened. I was heavily pregnant for our first wedding anniversary. We went to the zoo, I forgot my three gallons of ice-tea, and I actually ended up in the…
A few months ago, I was on a self-care kick. I bought three mindfulness magazines made from recycled paper, and a candle that smells of books. This was it. I was going to read through the magazines with the candle going. I was going to learn how to relax, and maybe even get some sleep. And yet. The magazines sit unread in various corners and different piles. The candle is still sealed. I’m still not sleeping, but that’s OK. I’ve…
When I read about Stephen Hawking’s death, I was transported to a pub in Glasgow where I once found a prime piece of graffiti: Stephen Hawking hates karaoke. I remember discussing this line with my friends and deciding it was kinda apt. My first thought on the death of genius was a tenuously linked personal memory. I went on about my day, steering Isla away from chocolate for all of her meals. I said nothing on social media because I very…
Since I’ve decided to tell it like it is about my life with a disability, I thought I might write a post spelling out my perspective of what disability actually is. This is not a general post on all disabilities. I’m aware that there are visible and invisible ones. I can only speak from my own experience as a wheelchair-user. Over the weekend, the fam and I went to a bookshop. There was a steep, but useable ramp to get…
