Accessibility Disability Life

He Doesn’t Peel My Grapes, And Other Accessibility Interestingness

16th January 2020

And so, Isla has this thing where she holds doors open for me. I don’t make her do it, she just does.

On a recent family road trip, after a coffee run with friends, Isla was there at the door, on her mission.

A stranger comes along and pulls the door wider. Isla stumbles back, but not that far, still looking at me. Takes up her space between me, the door, and the stranger.

And then the stranger says to my five-year-old, who has the same nose-wrinkle when we make our famous disgruntled face, this stranger says: Move away from the wheelchair lady.

Now. A few things.

Please don’t talk to my child using baby-talk. Even when she was a baby, we didn’t use baby-talk.

Don’t come up to my child on a mission already; decide to ‘help’ and make her trip over.

Stranger, don’t expect my child to listen to you. I have taught my child to be kind, but she doesn’t have to listen to strangers.

Especially those who suggest she move away from her parents.

Especially those who assume that the wheelchair lady cannot possibly be one of her parents. Sitting right there. Using my chair. To push through a door that you are blocking.

Hi. I’m her mother.

‘She’s not moving anywhere for you,’ I said. At the same time, Isla said, ‘That’s my Mum.’

Now. A few more things.

We have graduated from Mumma to Mum. Sometimes. Mostly when she is exasperated with me. Or strangers.

This whole exchange lasted 7 seconds, and the nose-wrinkle came out on both of us as we walked away.

That’s another thing. I am a wheelchair user who doesn’t walk. I will tell you I drive to get around. But I don’t get mad if someone suggests I’ve walked somewhere. You don’t have to say I rolled.

And no, I’ve never gotten a speeding ticket. And sometimes Isla and I do have races, but not because strangers have made a clever suggestion that we do.

I was watching this TED Talk from Kara Ayers about disabled parenting in an ableist world, and saying YES! to all of it.

Like the stranger at the door, and in line at the bathroom asking my child where her mother is. Right there, she says.

Like the guy who took the back of my chair to push me up a hill. Leaving my husband at the bottom of the hill.

Because why wasn’t my brother helping me?

Well.

And when my husband does help me, like cutting food in a restaurant, we got looks.

Now. I can’t cut food. It ends up on the floor. When I try to cut food, I also end up cutting myself.

Sometimes I order food that you don’t have to cut. I like nachos, and conveniently don’t have to share them with my cheese-phobic husband.

Anyway, that’s fine. But sometimes you have to eat the steak. Which Neil cuts for me.

And sometimes the looks come with a question: Does he peel your grapes, too?

Photo by upendran sd sd on Unsplash

No. Worry about your own food.

I can do my own thing, and when I need extra help Isla is good at advocating for my needs.

She doesn’t have to, but she wants to help where she can. She’s five, but she already holds the door.

And there are times when we can’t find an accessible park or beach to play in as a family. That’s fine, I can read my book.

When we get home, Isla and I can watch movies together or a new/old favorite, play video games. She’s sitting, I’m sitting. We’re communicating. Take this recent heart-warming and very us conversation:

Isla: Dude, you should go back to the training level, you’re not very good at this game.

Me: I got years on you, never mind.

Not unlike other families.

What accessibility interestingness have you dealt with lately?

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23 Comments

  • Reply Heather 16th January 2020 at 1:47 pm

    I don’t have any accessibility interestingness to share, just an alternative to the grapes. Due to my hypermobile EDS I’ve also always had trouble cutting things. I no longer feel ashamed to admit that for the longest time ever my dad used to cut my food for me; I now understand why and literally two days ago I learned even more about it. As I’ve gotten older my EDS has gotten worse in my hands, fingers and wrists and sometimes Chris has to help me cut stuff and yep, it’s happened in public because otherwise things end up skating across the table. We probably got some weird looks, I never bothered to look because this is our normal and I care more about the food. But never once have I had someone ask about it; the difference? You already know it; I’m not in a wheelchair. I’m disabled too but because I can still (still as in I’ve not deteriorated yet, I’m fully expecting it to happen either due to the EDS or ME) walk about on my own no one even considers it. It does come with it’s own many many issues, but for stuff like this it royally pisses me off on your behalf.

  • Reply Rhonda 16th January 2020 at 1:49 pm

    Hey there Lorna-I like that you said you are not going to be mad if someone says you walked somewhere. It’s a natural thing for us who don’t get around on wheels to say, and I know in the past I’ve referred to someone walking who does get around in a wheelchair and felt horrible about it! Like I’m being so insensitive, which of course was never my intention. I think it’s so valuable that you have this platform to explain life from your point of view. And your comments about other people’s assumptions is spot on. I’m reading “The Four Agreements” right now and it’s kind of blowing my mind. Because one of the agreements is “Don’t make assumptions”. I think we’d see so many positive changes in our lives and the world at large if we do our best to 1) recognize that we make assumptions all of the time, and 2) recognize when we are doing it.

  • Reply Kate 16th January 2020 at 1:55 pm

    Thanks for the link, one thing really struck me; should I not offer help to avoid being ableist, or should I still offer (in cases where it is actually valid) to avoid putting all the emotional load on the other person?

    • Reply Lorna 16th January 2020 at 2:40 pm

      Who gets to say the help is needed? If I need it, I’ll ask. If I’m going up a hill alongside someone, what right does a stranger have to push me? Speaking for myself you can ask, and when I say no thank you, that doesn’t make me a pissed off disabled person, just one that doesn’t need help with whatever I’m doing.

  • Reply Chips and Cookies 16th January 2020 at 3:04 pm

    I appreciate each and every one of your posts because it pushes me to examine my own behavior and assumptions so that I can learn better and do better.

    I cannot imagine asking a child where her mother is when another adult is right there in the room. The only time to ask is if the child is ALONE, and then it’s “Do you need help finding your grownup?”

    Do you follow Free Writing Events? Some are in the US, but some are in the UK.

  • Reply Melanie B Cee 16th January 2020 at 3:21 pm

    Entitled thinking (I know best, you are just a character in my drama and so forth) is common EVERYWHERE. I’m glad to read you’re raising a strong, compassionate daughter. At five years of age yet. Amazing. One statement my own mum taught me was to say “Why would you ask such a stupid question? (insert your own word for stupid if it’s not something you say – personal works too) when somebody asks something like ‘does he peel your grapes too?” My goodness. Good on ya for having a sense of humor about the whole thing.

  • Reply Rebecca Moon Ruark 16th January 2020 at 4:19 pm

    LOVE. (Not lovely, heaven forbid–ha). Only one thing I still can’t understand: cheese phobia. I mean, how does he live?!

  • Reply Mrs Dani Crater 88 - The Unseasoned Wag 16th January 2020 at 4:38 pm

    Wow. Just wow. Other than a cacophony of expletives, I literally have no words for the interaction with the stranger at the door. I’m so sorry that you have to deal with such ignorance but the relationship & education your daughter has with your disability is so heartwarming.

  • Reply Ellen Hawley 16th January 2020 at 6:53 pm

    I predict that Isla’s going to be a thoughtful and interesting kid.

    • Reply Lorna 16th January 2020 at 9:02 pm

      Thank you, Ellen. I hope she continues to be.

  • Reply Flossie 16th January 2020 at 9:16 pm

    Go Isla! Love how she is not afraid to speak up and advocate when appropriate. And love that YOU taught her well about not talking to (or in this case, listening to) strangers! 🙂

  • Reply kimsdiytribe 16th January 2020 at 10:57 pm

    Stunned at the stupidity of “let me rescue you” mindset. I love your passion, wit and cheeky humor!

  • Reply Shybiker 17th January 2020 at 1:14 pm

    *sigh* People are often ignorant and insensitive, bordering on rude. It’s rough dealing with that, especially on a regular basis. My sympathies. Try to remember not everyone is that way; that’s my mantra when people insult my gender-identity.

  • Reply Shann Eva's Blog 17th January 2020 at 3:40 pm

    Wow! Sometimes I just don’t understand people. I don’t have this exact experience, but when my preemies were little, and people would think it was OK to just reach in and touch them, I would get so mad. You really have a great attitude, and I love how you use your blog to create awareness.

  • Reply gemmaorton 17th January 2020 at 6:08 pm

    Being in hospital recently was quite the shocker. You’d think nurses and doctors would have some form of awareness training, or just plain sense and intelligence. ‘Can she communicate’ ‘does she need moving’ are just two of the very offensive and insensitive things said by medical staff.
    Are we disabled still so rare that people don’t know how to interact or just let us be?!

    • Reply Lorna 20th January 2020 at 9:29 am

      Glad you are home. And I’m still dealing with anxiety issues that started in the hospital before Isla was born. Nothing to do with Isla, just some nurses before and after she actually arrived. I believe there is some level of training available, not sure if it’s mandatory. I’ve lead some, just not in hospitals!

      • Reply gemmaorton 30th January 2020 at 10:57 am

        The way a person is treated during times of illness or stress definitely has an impact. Some/more/useful training is needed. Although it shouldn’t really be a thing even.

  • Reply A Rose Tinted World (@ARoseTintdWorld) 20th January 2020 at 9:18 am

    What kind of ignorance did that door blocker have? Love the fact that your five year old already has the sass to stop that kind of thing in its tracks. #MMBC

  • Reply Lisa | Handmade in Israel 20th January 2020 at 11:05 am

    An interesting perspective. I suspect that some people are simply trying to help, though it doesn’t always come out right! #MMBC

  • Reply Kim Carberry 20th January 2020 at 11:12 am

    How insulting of that man to you and your daughter!
    Isla sounds like such a lovely girl. x

    • Reply Lorna 20th January 2020 at 11:14 am

      It was another woman at the door, which made me even more mystified. The grape comment came from a man.

  • Reply RaisieBay 20th January 2020 at 12:17 pm

    The grape comment would have annoyed me so much, as would the door holding, but my kids are older and two of them (like their Dad) often forget to hold the door for me. My 12 year old is brilliant though. (tbf the other two are on the autistic spectrum and I can’t always blame them, sometimes just navigating themselves around can be difficult.) I do remember when I was the driver in the family, before my husband got his licence. I had a hand-controlled car and the looks we used to get off people when I was helped from my wheelchair into the driving seat, how can a paraplegic drive? How can people be so ableist? Nice to meet you btw. #mmbc

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