OK, so. Who else is a little tired of having to point out that disabled people are regular people?
That ‘special needs’ is outdated, and everyone has needs that are unique to them?
That person-first language is wrong?
That disabled people’s stories should be written by disabled writers themselves, and that disabled characters should be played by disabled actors?
That the access inclusion seeker deal sounds like some video game quest?
That disabled isn’t a bad word, and it’s OK to #SayTheWord. (An article on the hashtag is over here.)
The thing is this. I am disabled. Mostly by society/inaccessibility. My CP is not a big deal to me, but it’s a big part of me, and it doesn’t need fixing.
It isn’t on us to fix ourselves, as every other new-fangled or old-fangled euphemism for disability implies, but more that access to EVERYTHING needs to be improved.
And if you’re a disabled person who knows that disabled people aren’t superheroes, you are my kind of people.

My self-acceptance comes from having CP my entire life and liking that life.
The crappy parts of growing up had little to do with the fact that I used a blue, and then a purple and then a green, and chrome wheelchair to get around.
But I had to constantly prove to teachers and other educational professionals first that I could be educated, and then that I was smart.
After a while the only difference I found was in gym, and inaccessible school trips.
Being excluded from things when I was a kid sucked, but even then I knew it wasn’t my problem.
I sat off-stage during one school play, not because of my CP, but because there was no ramp to the stage. After that year, I was lifted onstage on my wheels.
I wasn’t embarrassed, it was life.
Fast forward to when I got married, and we couldn’t get married outside. Because I didn’t want to be dragged backwards down the aisle over grass, and we couldn’t have a flat surface platform built.
I wasn’t upset, we found another venue.
Fast forward again, to talking to other disabled mothers.
Seeing people upset that they can’t get on the floor and play with their kids.
Well, I love my kid with all my heart, and she knows it, but I’ve never gotten on the floor to play with her. Instead of feeling bad because being disabled keeps me off the floor, we always did other things.
And that’s OK.
Instead of being mad at your disabled body, be pissed that there are no chairs to sit on in playgroup.
Instead of wishing you could walk, ask why there are steps and no ramp somewhere.
Instead of being oh-so-grateful that someone opened a door for you, question the absence of automatic doors.
I write this blog to normalise my disabled life. Because it is normal, even boring.
I’d like to move on from stating the obvious disabled people are just people.
But every time I write/do something throughly normal, like travelling, or getting coffee, or getting out of bed and being a mother, people say you’re a superhero/rockstar/unicorn.

And then I compare notes with my disabled friends, and we laugh and laugh.
Because unless you are Touretteshero, disabled people aren’t actually superheroes. Even without capes.
We are regular people. Regular people who should have access to medical care when needed.
Funny, smart, annoying, regular people and we do not exist to serve as an inspiration or lesson for non-disabled people by our mere existence.
I call my four year-old a rockstar for putting on her own shoes. Think about that.
We are not children. We don’t need praise.
We are disabled, and it’s not a bad word or life.
We don’t need to be fixed. We need access.
(This post was edited to include more up to date articles)
Join the Gin & Lemonade newsletter!
Subscribe to get a roundup of posts and other groovy stuff every week!



18 Comments
Thank you for that heartfelt post.
You are just like you and I… We are all people.
And you’re right, sometimes what we might think of as positive, is just positive discrimination…
Its all good, you’re just a gal who needs a few tweaks to accommodate… Here or there!!!
In my limited opinion, anything ‘you’ need to be comfortable in my sphere of influence it is my job to try and do. I’ve made dairy free frosting, I’ve sent the dog to a friends house make my muslim friends comfortable, I am very able to keep meat and dairy separate. I just need to be told what is needed because in a world where I never thought about xy or z I don’t know what I don’t know. Thanks for helping me fill in those gaps, it is one of the reasons I try and read things written from different points of view and places. ps. you do get rockstar status if you manage to do the laundry AND fold it AND put it away in under 12 hours. The 4 times a year I do that I give myself a gold star.
Tangent: This post sent me down a rabbit hole I didn’t even know existed. I am a medical editor, and we get bludgeoned with the people-first stick at every opportunity. And that’s not going to stop, I know, but it was refreshing to read how some of the people in question feel about it. Thank you for (once again) allowing me to get my word-nerd on and learn something. That always makes my day.
Somewhat more relevant to your post: My son gets candy for using the toilet. (Yes, we’re beginning to see where we went wrong there…) I’d take that over being called a rock star any day. Maybe demanding candy would silence the patronizers? And if it didn’t, you might at least get some candy out of the exchange. Win-win! 😀
Some old lady stranger actually gave me candy once. I was 17, minding my own business, waiting outside a shop for a friend.
Damn. People are weird.
I didn’t start this but check out #AbledsAreWeird on Twitter. So much weird. But our every day.
So have you actually been called a unicorn??😁 my girls sometimes call me pretty, beautiful mummy. It just makes me melt.
Two thoughts come to mind. We seem to be either superhero or invalid; if a business has steps or a similarly decorated ramp, virtually everyone takes the ramp.
Amazing. The world needs to hear more of this perspective because I feel as though it becomes almost scary territory for those who don’t live life looking through the same lens as people with disabilities. It becomes another ”us” vs. ”them” scenario when in reality, just like you said, we’re all the same. beautifully written 🙂
Thank you. We’re not the same, no one is the same, but we should be equal.
Well said Lorna, couldn’t agree more!
Another great honest post Lorna. Today we were walking to a hospital appointment and some really irresponsible drivers decided to park so far on the path it was difficult to walk on. My husband said “This is ridiculous if you had the baby in a pram you couldn’t get through here, you’d have to go on the road.” and I said “True but what about people in mobility scooters or wheelchairs, they have this problem all the time!” he then said he hadn’t thought about it and then felt angry about it – himself for not thinking about it and the fact that this is a daily struggle for so many. I think those of us who aren’t disabled really take things for granted even without realising it. So we mentioned the cars in the hospital and they said they’ve tried taking action but nothing changes. It isn’t good enough and more people should shout up about inaccessibility instead of some of the nice things people say! So I’m going to write to the PALS department at the Trust so at least it’s in writing.
Wheelchair users with babies in prams blows people’s tiny minds.
I see inaccessibility wherever I go, and it is really frustrating. And person-first language is kind of ridiculous. My son’s autism informs almost everything he does, and we’re not ashamed of it, either. We say “autistic kid” instead of “kid with autism.” Because the latter sounds so cumbersome, like dragging a tire behind the words.
I’m trying to teach my kids and my students to make the world more accessible for someone else whenever they can. Hold that non-automatic door, return shopping carts that have been left in the disabled parking so that someone who needs that space can park there, move things off the sidewalk so that wheelchair users can get by without having to detour into the street, meet people where they ARE rather than where we think they ought to be.
Have you seen “Special” on Netflix? It was created, written, produced by the star, who is himself disabled. I am trying to ignore that Netflix only threw us crumbs (each episode is 14 minutes long, really?!) and celebrate that there is a place for a disabled writer/actor/comedian at the table. Why has it been so long in coming? Fair warning, it is a very adult program, but I am hoping they will have a second, longer season and that the door for the next up-and-comer is an automatic one.
This might just be my favourite post. I have nothing to add except it is like your speaking my mind!
That’s means so much to me, and I’m glad I could deliver on your birthday! x
I totally agree! We are normal people who just carry out tasks, jobs and activities in unique ways! 🙂
Thanks, Emma. I knew you’d get it, somehow!